Thursday, February 10, 2011

I Have Rash From Hypo Thryriod Help

It is our fault we are the specialists of our children comes

I write today because it is a fact that I can finally officially done.

I write also for all those parents who may be in this phase where suddenly it seems we must go back to school to learn how to raise our child ASD.

I vividly remember this feeling, this step very difficult to cross when we start the diagnostic procedures for a pervasive developmental disorder.

is to accept something you do not see the world the same way as our child. Thought to have the education necessary to raise our children and help them develop "normally".

When approached I felt helpless. I did not what he "needed" in order to help my child. It took trained specialists to university to explain how.

At this point it's easy to question.

I let s'autostimuler. Is that correct? Some say yes, others say it will prevent him from developing it and locked him in his world.

should I contact a speech therapist, an occupational therapist, a psychologist. I'm clearly a bad mother who does not want his child changes so I do not do these things. What are the experts.

I'm talking about putting up icons. Heuuuuu picto what? Is called desensitization, sensory modulation disorder. Quick google!

guilt mounts, obviously, it seems that everyone I speak Chinese, I'm clearly not what is needed to adequately take care of my child!

specialists arrive, the meetings, we were bombarded with various boards and suddenly our parental instinct takes the edge? THEM they know what they're talking about!

The psychologist told me that I should not .... The speech therapist told me I should do .... The OT told me that he perceives it .... And

me there? And he there?

TED A child is nonverbal play the guessing game. He can not tell us his feelings, the reason for his difficult behavior or seizures. He can not even tell us why he laughed. A child

TED record is successfully untangle all behavioral untangle what the child understands and what he really does not understand. It must analyze each crisis and do not get caught between "fancy" and misunderstanding. It must support specialists "who know everything" and entourage "who knows everything."

With TED comes a ton of experts and advice and at first it really come to believe that we, it was not the case.

This phase lasts a time which varies from one parent to another. This may be several days / weeks, others it will be several months.


I can officially tell you today. After more than a year of service. After more than 2 years of meeting with various specialists (read: a bit too much for my taste!). After several assumptions and "do as they like or do-it".

I can tell you that we, as parents we were, we are and we will ALWAYS our specialists children.

specialists can come up with a ton of advice, assumptions, different solutions tailored to supposedly "our" children, but they have never experienced this, they will never know our child.

specialists apply theories learned in books. They generalize. The eighth child TED walk because ... The TED child had a fit in this circumstance because ...

him and our child? Because our child was not conceived in a book. Of course there are similarities in behavior. As children NT, some phases of development are similar, arriving about to this age for some reason, but like all children, some of them out of books and will not "by the book."

Sometimes I feel that this is an oversight in the world TED, as if we forgot that our children can yes, and be consistent with the books by the Book, and sometimes not. The child TED is also unique and this is where we, as parents, it comes into play and we finally realized that despite our lack of study material, we will remain the specialist of our child.

specialists may well happen with their advice, their theories out of books, but I know now that it's me who has the last word, and that Finally, I am not so void and powerless as that!

Because books, benches University, do not replace us.

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