Understanding the pervasive developmental disorder You understand that there are now over 2 years that I write on the blog to inform and offer my testimony lived on the pervasive developmental disorders. Two years of text, it may be time to go. I had already suggested to a group so that newcomers can meet. I also think that consolidation can help people who would tell their family and friends. This is one of the main reason that motivates me for two years to write here. I throw the message, if there are questions you think unanswered topics that I would not touch, do not be shy especially for me by email. The announcement of a pervasive developmental disorder in children is like a bomb had landed on the home of the parents. Many parents feel that a split second we just destroyed their world "perfect." All dreams seem to break and is an uncertain future, often seen on the dark trick shock, which takes place.
This stage is extremely difficult to bear. Parents spend an incredible range of emotions. Sadness, colère, la remise en question, la culpabilité, l'intolérance, l'isolement. C'est une étape difficile et l'annonce du trouble envahissant du développement dans la famille, oui ça change une vie.
Un trouble envahissant du quotidien - Le choc du possible diagnostic On entend souvent parler du choc du diagnostic, plus rarement du choc de l’annonce du « possible » diagnostic. Pourtant le début des démarches vers un diagnostic est une étape extrêmement difficile à vivre. On entre dans un univers inconnu. On arrive parfois avec nos idées préconçues de ce qu’est l’autisme, ideas that can make the acceptance of the steps just as difficult as the acceptance of future diagnosis.
How to be good with approaches to diagnosis, so we have a hard ourselves to see the problem? Not all parents who have the strength to learn about the TED and not all parents who have had suspicions of any disorder. For some, the announcement of this possibility may be a shock if they did not see coming. Do not forget the subtle cases, those on the borderline between the typical child and the child ASD.
Guilt Why I did not see coming? is an issue that crosses the minds of most parents' approaches to diagnosis, or who have recently received the diagnosis. The question often leads to guilt. Why I did not see anything? Why I did not notice the obvious? It feels so guilty of time "lost" not to have been quite "soon" to remark that there was a problem.
When we bring specialists to the peculiarities of our child that the tests show how the difficulties are obvious, we feel as if we were blind.
Why? Why has not seen what seems so obvious afterwards? Following
Fall 2008 Guilt! I feel guilty about many things. Do not worry I'm far from being a depressed person ... despite what the written word can sometimes be transmitted. But I'm still guilty even though I know I should not. Easy to say no? I feel guilty in the day when my boy goes 1hr to launch mega blocks alone in his corner while I'm folding laundry or taking care of the sick little sister. I feel guilty when he spends too much time in his chair booster that I'm waiting for the other two to be able to disembark. I feel guilty for not having enough time to sit with him and show him things ... although I know very well that he does not cooperate ... and especially that he mad. I feel guilty at night supper to feed him with a toast, then it is one of only food that still accepts. More ... I said in the previous post ... I feel guilty of categorizing my guys ... to know his problem without a diagnosis. Isolation The effect of isolation est bien présent chez les familles avec un enfant atteint d'un trouble envahissant du développement. Ce n'est pas vraiment la faute de quelqu'un, c'est seulement une conséquence d'une réalité différente des parents d'enfants sans troubles divers.
Vous a-t-on demandé "comment ça va?" Je vous pose la question aujourd'hui.
Est-ce qu'on vous a demandé comment ça va? Pas la petite question de cadre de porte à laquelle les gens ne veulent pas vraiment de réponses, mais la question sincère. "Comment tu vas? Comment tu vis toutes les épreuves?"
Je me rappelle lorsqu'on a fait les démarches pour and our son got the diagnosis, how is what hurt me most. For people, life has not changed and some of them think to ask us how we're going. Following
Because no it is not an accusation against anyone
Steps ... or those battles that will never end Parents impatient, guilty parents We are awaiting parents! Well I do not generalize, and I do not put our fault either, but the company wants "everyone to be like that again.
Children who attend the center are trained in cleanliness at the same time, drinking glass, eating with utensils.
compare against their parents on their child's development with the neighbor. You know, the little boy who walked at 10 months while you walked at 14 months?
As I have already explained there are also books, stages of development, while to "stress" the parents a little more when the child does not meet the "standards" established.
We became anxious parents.
Why I talk to parents anxious? Because most of the time when a parent tries to express concern at the development of his child, he made answer "see there's nothing there" ... "It is slower etc. .. etc. .. etc. ..". For some children, these people are right. For others, they twist. Following
The obstacle course The assault course. You know, this journey full of pitfalls, trials and obstacles, when the "path" you would think that it will never end. This is a physically and psychologically difficult to cross.
The obstacle course is being undertaken by the Parents children "different". Each person will have a different route, but all agree how demanding it is. Physically? Because some people will completely deplete them, will forget to take care of them during this journey ... Psychologically? Because the term demand while working, self-esteem, emotional, review its priorities, depression ... Following
Diagnosis effect diagnosis Suspicion and diagnosis of ASD for parents is a big event in their lives.
We go through beaucoup de questionnements. On se demande quelle erreur nous avons commise avec l'enfant, pourquoi nous ?, est-ce qu'on aurait pu le prévénir, pourquoi on ne l'a pas vu avant ?... et j'en passe.
Ensuite on doit vivre avec le regard des autres, la famille attristée par la nouvelle, les étrangers qui ne savent pas vraiment ce qui nous arrive...
Accepter le diagnostic est une épreuve de longue durée. À vrai dire, il y a aura toujours des moments plus difficiles que d'autres, mais le temps fait bien les choses et ça deviendra de plus en plus facile à accepter.
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La réaction the entourage In the whirlwind of feelings that we took when we officially announce the doctor's assumptions about our child, it could happen to forget that our environment is also affected by these events.
Our surroundings, our family, our friends, may have lived with us, by far, our concerns about our child.
is a delicate subject to discuss. Grandma may have noticed things, not daring to talk to parents. That's what happened to me. People noticed the difference in our child, but never ventured to put a word on the delay. My Grandma have me admitted after the beginning of my efforts have been afraid to tell me ... and yet she knows I am a very open minded. Our discussions have finally made him understand that even if she had not spoken to me, I knew. I knew my boy had a problem.
Can we blame those around us who have remained silent? They are in a difficult position. Some parents are not ready to hear the "truth" and will blame anyone wishing to address the subject. Some parents are afraid.
The announcement of the early steps may have many effect on the environment. relief for those who did not dare broach the subject directly with parents.
Denial , for those who can not see the specifics of the child.
Find a guilty, he must find a cause to feel better.
Malaise, Autism, is a scary word, people do not know how to talk. Want
reassure parents, unfortunately not always the right way.
Depression, anxiety ... just like the parents live, sometimes multiplied par la peine pour leur petit enfant et pour leur propre enfant tout à la fois.
La liste est infinie, les réactions sont uniques à chacun.
Dans ce tourbillon l’entourage peut commettre certaines erreurs. C’est malheureux et je l’espère involontaire la plupart du temps.
Pour l’entourage voici donc quelques petits conseils à retenir : -
Ne pas nier en tentant de rassurer les parents : "Ah non il est correct cet enfant-là ..., ça pas de bon sens "
- Chercher une autre cause : "Ah il est sûrement juste paresseux... "
- Accuser son grade "This is a second ... that's why it is neglected, you have less time to take care of him."
- The classic boy : "The boys are slower, it will unlock. "
- Accusing parents :" This child is king ... he does whatever he wants, "" he listens to too much TV, "" you do not have enough authority over him "
- Search thousand and one solutions: We need to listen, no solution on why our child wakes up four times a night. The process has just begun for us, there is more much room for boards to "because you have to let him cry."
When people are not familiar with a situation they can bring some judgments about the way we do. It is both a means to protect themselves against the inevitable is not it? Denial. Try to avoid this error is very hurtful for parents.
What may be needed: -Do not feel uncomfortable to ask more questions . If we tackled the topic is that we are ready to respond. If we are talking about is probably because we need to be listened.
- Do not look for something clever to say , your listening is sufficient.
- Request new without discomfort!
- Remember to congratulate the parents . Try not to forget in all the work they do with their child, try not to go telling them how much you're sad for them. They do not live that sentences with their child.
What is the pervasive developmental disorder? diagnostic criteria 11 minutes in the world of autism Various videos "Definition" pervasive developmental disorder is a difficult question to answer, and answers are vague as well as the pervasive developmental disorder is something few concrete define.
We find essentially the same problem in the explanation of the various neurological disorders that exist. These are problems "in the head," disorders that can not see, we can not show, explain the physical.
If you ask, what's a broken arm, it's easy to present an image to understand what it is. It can be seen by radiography, and especially there is NO room for interpretation.
Parents approach to diagnosis seeking answers as possible specific to a disorder that is not even. Following
LABEL The label is a topic that is brewing. We wants it, we do not want it, we judge, she was questioned, she is seen as bad, we are afraid.
If you feel concerned by the statement above, these readings should interest you.
A label Please! These people who are looking for labels at all costs The danger of the label Multiple labels Can we put something clear Some myths, or misunderstood TED Imagination and the person with ASD When we read on the TED, of course all the pictures stand out. The diagnostic criteria and examples we are given are generally the "good old case of classic autism."
Today we know that the autism spectrum is much broader than just the autism of Kanner (classical).
When parents consult a professional for their child, the professional look some thing like eye contact, the interests of the child and the ability to pretend. If the child is pretending, several front-line professionals exclaim "everything is beautiful." Following
He diagnosed mild ... there is nothing there! When I need to talk about my boy, I can just say "autism" ... it's simple, people understand. If want more details? "Oh well it's a little classical case in movies like".
People also have compassion, pity perhaps sometimes, sadness. Poor parents it must be difficult, "autistic" ...!
If we must talk about the mining, or other parents will recognize may be here. She has a "PDD (pervasive developmental disorder)" (we do not yet have reports or specifications from high level autism or PDD-NOS).
I speak Chinese would like it not? Some even live comments platforms like "oh it must not be so bad ... it's not as bad Autism. " Or "Oh! Today we try to label children unnecessarily just temperamental and wild. " The lucky ones have families and sympathetic surroundings, the less will do is accuse ... Autism day after day? Ah would not simpler? And in the minds of people is even "more serious". Following
Living with the cliches of autism The autism spectrum is complex to understand. Complex for experts, a little more for the parents and even more for the rest of the world.
Autism? It seems more easy to understand ... I repeat I know.
As best I can, my writing, I try to "enlighten" a few people on this subject that is dear to my heart. Try somehow to explain the subtleties, features, differences between each, and everything that our children have obtained (or shall obtain for those in steps) a diagnosis of pervasive developmental disorder (or disorder Autism Spectrum ... your choice).
I work hard but I do it for fun. I speak from my own observations, my experiences and my findings. I work hard, and hardest task is to break down stereotypes. People are not just is opened, the pictures are so much space in our lives. These photographs bring us
literally sticks in the wheels. Really! Despite my knowledge of the subject people can not help but be defensive when I try to address some of the subtleties in diagnosis and it is difficult, at times unbearable. Following
Talk about a case of "light" ... it is not simple ... To me that is so easy to raise (my best) families and friends ... To me that is so easy to accept the diagnoses and talk about ... it is quite another thing for mining.
I meet people who ask me some questions about Tommy ... and the obvious question always comes.
"And the other children themselves? They are correct? They have nothing?"
And there ... me ... which raises awareness for almost 2 years ... which is totally comfortable with the peculiarities of my children and more than well informed to be able to explain to people ... I HAVE A LOCK. Following
All sorts of peculiarities Specific associations One of the main problems found in le TED (et peut-être d'autres troubles semblables?) est la généralisation des apprentissages. Il y a aussi une question d'association qui est faite dans la tête de l'enfant TED.
Pour un enfant typique... un verre est un verre. Qu'il soit bleu, blanc, rouge, qu'il soit grand ou petit. L'enfant peut avoir une préférence, mais pour lui un verre c'est un verre en autant que ce soit fait pour boire.
Pour l'enfant TED certains parents parleront à un certain moment de rigidités. L'enfant refuse de boire dans un autre verre ou bien dans une autre assiette, avec une fourchette différente de l'habitude sinon l'enfant fait une crise.
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Self-stimulation
The complexity of language acquisition The hand tool eye contact "rigidities" therapies Intervention (IBI) Evidence-A small daily treat
The HERE questioned Especially for parents of children with different Confession of a mother like other moms perfect exist?
NO!
And it is the subject of my message here today.
It's a few days (even more than a week) that the text keeps going through my head, but requires big week .... I did not have time to do so.
I take at this time, a small well-deserved break while mining is a dodo, and Tommy plays his game with a magnet seated at the table beside me, to write it last!
To be on forums for over 5 years, and read some blogs ... I realized it was easy to romanticize people just by reading their text ... and thereby feel guilty yourself. Following
I am a mother like other The demands of society It is our fault Never forget this: We are the specialists of our children I will continue regularly update this page.
